RareWear Logo v6.png

A Rare Genomics Initiative

 

A Rare Genomics Institute Initiative

What is RareWear?

The RareWear program connects rare disease patients to medical device providers to offer free devices to help patients better monitor and manage their condition. RareWear is an ongoing program and patients are welcome to apply throughout the year.

Why RareWear?

Research and product development for rare diseases traditionally focuses more more on drugs and biological products. RareWear seeks to fill the gap for rare disease patients in need of monitoring devices to help manage their condition. The program benefits both patients and sponsoring companies alike - patients receive devices they normally don’t have access to and sponsors will gain a better understanding of how their products can help an important patient population. To learn more, read our blog post here.

How Does it Work?

Patients will be supported through the device matching process from a member of Rare Genomics Patient advocacy team. Once matched, Rare Genomics will connect patients to one of RareWear’s sponsoring companies to provide a device free of charge. Devices will be provided based on patient need and availability through the duration of the program.

Conditions RareWear seeks to support include but are not limited to:

Conditions_homepage.png
 

The RareWear team is here to help you get started!

Rare genomics is continually working to keep up with demand for RareWare device matches. Submit an application today to add your name to the candidate list and be matched as a Rarewear recipient as soon as possible when a device becomes available.

Press Releases
Rare Genomics Institute and BodiMetrics Partner to Provide Rare Disease Patients with Wearable Devices

Washington, D.C. Aug 2 2023.  The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide. 

Read More →
Rare Genomics Institute Marks International Rare Disease Day With New "RareWear" Program

By AJMC

The Rare Genomics Institute, a nonprofit patient advocacy group, announced it will launch its new RareWear program, marking 2020’s International Rare Disease Day. The program works with patients who have rare diseases to connect them with medical device providers specializing in technology for monitoring and managing conditions. Once matched, patients will receive a device for free from medical device technology providers Bodimetrics, Biotricity, or Strados Labs.

Read More →
Rare Genomics Institute Launches Free Rare Disease Device Program

By HPC Live

In alignment with International Rare Disease Day, the Rare Genomics Institute (RG) has announced the launch of their RareWear program, a global philanthropic program designed to bridge rare disease patients with medical technology companies.

Read More →
Rare Genomics Institute Launches Initiative to Provide Free Monitoring Devices to Rare Disease Patients

By Global Genes

The Rare Genomics Institute said it has launched the RareWear program, a global philanthropic initiative to connect rare disease patients with medical device technology providers to better monitor and manage rare disease conditions.

Read More →