Rare Genomics Institute Cookie Notice

Cookies

Revision date: August 31, 2018

Welcome to [Raregenomics.org][1] (Rare Genomics Institute)! We are a community dedicated to helping patients with rare diseases find hope for a cure. We are built on a premise that sharing information is good, especially when it comes to information about rare diseases. The more you share the more you have an opportunity to help others whose lives have been touched by a rare disease. By their nature, rare diseases are often not well understood. By joining our community of support and sharing information about your experience, you will help others, including researchers, better understand your disease. Below is our cookie notice.

What are cookies? Cookies are small data files that are placed on your computer or mobile device when you visit a website. The website may retrieve these cookies from your web browser (e.g., Internet Explorer, Mozilla Firefox or Google Chrome) each time you visit, so they can recognize you, remember your preferences and provide you with a more secure online experience. Almost every website you visit use cookies to help make your online experience as smooth as possible and many websites will not function at all without the use of cookies (or other similar techniques, such as "web beacons" or "tags"). Cookies set by the website owner or service provider (in this case, Rare Genomics Institute) are called “first party cookies”. Cookies set by parties other than the website owner are called “third party cookies”. Third party cookies enable third party features or functionality to be provided on or through the website or service you are using (such as advertising, interactive content and analytics). The third parties that set these third party cookies can recognise your computer both when it visits the website or service in question and also when it visits certain other websites or services. Cookies generally do not hold any information to identify an individual person, but are instead used to identify a browser on an individual device. If you prefer, you can restrict, block or delete cookies by changing your browser settings, but that may mean that the website won't work properly. For more information about cookies and their impact on you and your browsing visit http://www.aboutcookies.org.

Why do we use cookies and other tracking technologies? We use first party and third party cookies for several reasons. Some cookies are required for technical reasons in order for our Websites and Services to operate, and we refer to these as “essential” or “strictly necessary” cookies. Other cookies enable us and the third parties we work with to track and target the interests of visitors to our Websites, and we refer to these as “performance” or “functionality” cookies. For example, we use cookies to tailor content and information that we may send or display to you and otherwise personalize your experience while interacting with our Websites and to otherwise improve the functionality of the Services we provide. We also enable our users to employ cookies and similar tracking technologies in connection with their use of our Services in order to allow us and our users to track their subscribers. Finally, third parties serve cookies through our Websites and Services for advertising, analytics, and other purposes. This is described in more detail below.

Types of Cookies

Strictly Necessary Cookies

These cookies are essential in helping you to make use of the features and services we offer on our site. Without these cookies, the services you want to use cannot be provided. These cookies do not gather information about you that could be used to identify you, and they do not monitor or remember where you have been on the internet.

Functional Cookies

These cookies allow us to provide you with a better online experience when you use our website. These cookies do not gather information about you that could be used to identify you, and they do not monitor or remember where you have been on the internet.

Performance Cookies These cookies allow us to count visits and traffic sources so we can measure and improve the performance of our site. They help us to know which pages are the most and least popular and see how visitors move around the site. All the information these cookies collect is aggregated and therefore anonymous. If you do not allow these cookies we will not know when you have visited our site, and will not be able to monitor its performance.

Targeting Cookies

These cookies may be set through our site by our advertising partners. They may be used by those companies to build a profile of your interests and show you relevant advertisements on other sites. They do not store directly personal information but are based on uniquely identifying your browser and internet device. If you do not allow these cookies, you will experience less targeted advertising.

MANAGING COOKIES

Most internet browsers allow you to erase cookies from your computer hard drive, block all cookies (or just third-party cookies) or warn you before a cookie is stored on your device.

Please note, if you choose to block all cookies, our site may not function as intended and you will not be able to use or access many of the services we provide. If you have blocked all cookies and wish to make full use of the features and services we offer, you will need to enable your cookies. You can do this in your browser (see below).

Rather than blocking all cookies, you can choose to only block third-party cookies which will still allow our website to function as intended. To enable cookies on our website on your PC, follow the steps below.

Google Chrome

  1. Click "Tools" at the top of your browser and select "Settings".
  2. Click "Show advanced settings", scroll down to the section "Privacy" and click "Content Settings."
  3. Select "Allow local data to be set". To only accept first-party cookies, check the box next to "Block all third-party cookies without exception"

Microsoft Internet Explorer 6.0, 7.0, 8.0, 9.0

  1. Click "Tools" at the top of your browser and select "Internet Options", and then click the "Privacy" tab.
  2. Check that the level of your privacy is set to Medium or lower, which will allow the use of cookies in your browser.
  3. If set above medium level it will prevent the use of cookies.

Mozilla Firefox

  1. Click "Tools" at the top of your browser and select "Options".
  2. Then select the "Privacy" icon.
  3. Click the "Cookies" and select "Allow pages to create a cookie."

Safari

  1. Click the gear icon at the top of your browser and select "Settings".
  2. Click the "Privacy" tab, and then select the option "Disable the use of cookies by third parties and advertising cookies."
  3. Click "Save".

To enable cookies on our website on your MAC, follow the steps below.

Microsoft Internet Explorer 5.0 on OSX

  1. Click on "Explorer" at the top of your browser and select "Settings".
  2. Scroll down to the "Cookies" section in the "Received Files".
  3. Select "Do not ask."

Safari on OSX

  1. Click "Safari" on the top of your browser and select "Settings".
  2. Click the "Privacy" and then "Enable cookies."
  3. Select "only the pages you have visited."

Mozilla and Netscape on OSX

  1. Click "Mozilla" or "Netscape" at the top of your browser and select "Settings".
  2. Scroll down to the "Cookies" under "Privacy & Security".
  3. Select "Allow cookies only to the original site."

Opera

  1. Click "Menu" on the top of your browser and select "Settings".
  2. Then select "Options" tab and the "Advanced".
  3. Select "Enable cookies."