RareShare

Programs > RareShare

What is RareShare?

Screenshots of the RareShare website with a focus on the homepage and forum section, featuring a white background, colorful abstract molecular graphics, and navigation menus for community, news, sign up, and login.

RareShare® is an online social network that connects rare disease communities. It fosters online information exchange among patients, families, researchers, and medical professionals. Our platform encourages sharing for mutual benefit, offering over 1,000 disease communities and the option to create new ones. Membership is free, promoting support networks while ensuring information accuracy and user privacy.

It is easy to feel isolated with a rare disease. RareShare exists to provide emotional support for those who are "1 in a million". Together, we can develop hope for a cure.

Why Join RareShare

Icon of three people holding hands in purple on black background.
Three people holding up a large heart shape together, depicted in a simple purple line illustration.

Community

Create a sense of community for those affected by rare disorders

Connect

Connect with others who are affected by the same condition

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Contribute

Contribute condition-related information, experience, support, and resources

How Do I Join?

To begin your RareShare journey, please visit the website at rareshare.org or click on the button below to complete the registration process. This will allow you to access the various resources and opportunities on the platform.