A Rare Genomics Initiative

 

For Interested Patients

Interested Patients.jpg

Value for Patients

  • Receive access to medical devices free of charge

  • Manage your condition through non-invasive monitoring devices

  • Engage with device companies to help better serve your condition 

How Does it Work?

  • Apply to be a member of RG 

  • A member of our Patient Advocacy team will reach out

  • Specify which disease area is most applicable to you

  • If available, match with a sponsoring company’s device 

  • Fill out the device order form for the sponsoring company (may vary by company)

  • Sponsoring company will send the device to you

  • Share your experience with RG!

Download our PDF RareWear Patient Brochure to learn more

The RareWear team is here to help you get started!

Press Releases
Rare Genomics Institute and BodiMetrics Partner to Provide Rare Disease Patients with Wearable Devices
Rare Genomics Institute and BodiMetrics Partner to Provide Rare Disease Patients with Wearable Devices

Washington, D.C. Aug 2 2023.  The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide. 

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Rare Genomics Institute Marks International Rare Disease Day With New "RareWear" Program

By AJMC

The Rare Genomics Institute, a nonprofit patient advocacy group, announced it will launch its new RareWear program, marking 2020’s International Rare Disease Day. The program works with patients who have rare diseases to connect them with medical device providers specializing in technology for monitoring and managing conditions. Once matched, patients will receive a device for free from medical device technology providers Bodimetrics, Biotricity, or Strados Labs.

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Rare Genomics Institute Launches Free Rare Disease Device Program

By HPC Live

In alignment with International Rare Disease Day, the Rare Genomics Institute (RG) has announced the launch of their RareWear program, a global philanthropic program designed to bridge rare disease patients with medical technology companies.

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Rare Genomics Institute Launches Initiative to Provide Free Monitoring Devices to Rare Disease Patients

By Global Genes

The Rare Genomics Institute said it has launched the RareWear program, a global philanthropic initiative to connect rare disease patients with medical device technology providers to better monitor and manage rare disease conditions.

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