RareWear

Programs > RareWear

What is RareWear?

The RareWear program connects rare disease patients to medical device providers to offer free devices to help patients better monitor and manage their condition. Research and product development for rare diseases traditionally focuses more more on drugs and biological products. RareWear seeks to fill the gap for rare disease patients in need of monitoring devices to help manage their condition. The program benefits both patients and sponsoring companies alike - patients receive devices they normally don’t have access to and sponsors will gain a better understanding of how their products can help an important patient population. Our devices target: cardiovascular/heart, respiratory, muscular/neuromuscular, neurological, ophthalmic, and chronic conditions.

A smartphone displaying a sleep report app with graphs and data on oxygen levels and heart rate, held in a person's hand with a fitness tracker on their wrist. 
BodyMetrics’ Circul+ smart rings that monitor vitals

Benefits of Joining RareWear

Purple circle with a dollar sign inside, crossed out by a diagonal line, indicating no money or no cost.

Free of Charge

Receive access to partnered medical devices free of charge

Purple icon of a smartphone with a heart and heartbeat line inside it.

Non-invasive Devices

Manage your condition through painless monitoring devices

Two chat bubbles, one with lines of text and the other with a question mark, in purple outline.

Support

Engage with devices companies to help better serve your condition

Our Device Partnerships

A portable pulse oximeter displaying oxygen saturation and heart rate on its screen.
A laptop displaying a multi-colored graph on a digital analytics or data visualization dashboard, with a white smart speaker and a smartphone showing a fitness or health app on a white background.
A handheld barcode scanner with a black handle and a gold-colored scanning window.
Smart fitness watch displaying heart rate, oxygen level, and pulse

O2 VibeTM Sleep & Fitness Monitor

Circul+ Smart Ring

Currently Offering

Currently Offering

RESP Biosensor

Bioflux ECG Monitor

Currently Offering

Past Offer

How Do I Join?

Simply apply to the RareWear program by filling out the form if you’re not yet a patient. Depending on condition and if there’s a suitable match with our devices, we will start the process to get the device out to you as soon as possible. If you’d like to see the steps involved in becoming a patient and joining a program, please visit our Programs page. If you are already a patient but interested to see if you qualify for a device, please get in contact with your research advocate. If there are any questions, please don’t hesitate to Contact Us.

Rare genomics is continually working to keep up with demand for RareWare device matches. Submit an application today to add your name to the candidate list and be matched as a Rarewear recipient as soon as possible when a device becomes available.

Frequently Asked Questions

  • Decisions are usually announced roughly one month after the application deadline.

  • Yes, the devices listed in the program will be given for free if you are matched for it. You do not have to return the device after receiving it.

  • Item description

  • For any further RG assistance, please contact us here.

  • No. To maximize the number of patients receiving benefits from this program, a patient will be limited to applying for only one participating device.

  • For any direct assistance on one of our participating devices please contact the respective companies:

    • Biotricity +1-800-590-4155

    • Bodimetrics +1-844-744-8800

  • Please contact your RG Patient Advocate for further assistance.

  • There is not an additional patient compensation component to the program. At its core RareWear is a philanthropic program in which RareWear commercial sponsors are providing gifted devices to patients, with Rare Genomics creating the eco-system to do so. To add some more context, Rare Genomics is a volunteer-driven organization that provides 100% pro-bono services and philanthropic partnerships to the community - we are not a revenue-generating organization.