Volunteer and Career Opportunities

At the Rare Genomics Institute (RG), our volunteers are our organization. RG’s platform has helped advance the understanding of rare diseases globally, but we simply could not function without our volunteers. If you are interested in volunteering or working for Rare Genomics Institute, please contact us or check out our open positions. We’re doing big things at RG.

Check out what our volunteers have to say about their experiences helping rare patients below.

What our Volunteers say

  • A woman with long black hair and glasses smiling outdoors in front of green trees.

    "I volunteer for RG to serve and advocate for individuals with undiagnosed rare diseases to make next generation sequencing and analysis more equitable and accessible. Ultimately, I volunteer for RG to spark hope for families."

    Lauren Fang

  • Black and white photo of a woman with dark hair smiling at the camera.

    “RG has just become a part of my life. I am glad to work with a very dedicated group of volunteers with diverse talents and passions to help rare disease patients."

    Eva Wu

  • A young man with short dark hair, light skin, and blue eyes smiling, wearing a black speckled t-shirt, standing against a dark textured background.

    “I came to Rare Genomics with the goal of putting my skills to good use in making a positive, measurable impact in the lives of others. Prior to joining the organization, I was not overly familiar with the rare disease space, so I've had the privilege of not only contributing to a life-changing cause, but learning from professionals in the field along the way. It's been an invaluable, fulfilling experience - My only regret is not finding them sooner."

    Nic Albright

  • A man with glasses and short hair, smiling, in black and white.

    “I volunteer at RG because I wanted to apply what I learned as an HR professional to assist RG with finding volunteers for highly meaningful roles. It’s imperative every role be filled with enthusiastic and capable people that can use their knowledge and efforts to assist those with a rare disease.”

    Mark B.

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    "Volunteering for RG means being part of a team that support people looking for answers and helping to provide clarity in a sea of unknowns. It's working with so many dedicated and talented volunteers to bring more tools and resources to the rare and undiagnosed community. It means so much to be a part of a team able to offer support, whether it's through information, connections or resources to navigate their healthcare journey."

    Elizabeth L