Rare Genomics Institute logo

DONATE NOW

Rare Genomics Institute
  • What is Rare Genomics Our Mission Rare Disease Facts Partners The RG Team Board of Directors Privacy Statement
  • FAQ Patient Success Stories Rare Diseases List Education Rare-Ed Infographics
  • How We Help Patients RG Patient Research Services RareShare RareWear
  • BeHEARD Competition Publications
  • Donate to RG
  • Contact Us Opportunities Follow us!
  • Rare Disease Day News, Events, and Blogs Press Releases Newsletter
Rare Genomics Institute
  • About/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
    • FAQ
    • Patient Success Stories
    • Rare Diseases List
    • Education
    • Rare-Ed Infographics
  • Programs/
    • How We Help Patients
    • RG Patient Research Services
    • RareShare
    • RareWear
  • For Researchers/
    • BeHEARD Competition
    • Publications
  • Donate/
    • Donate to RG
  • Join Us/
    • Contact Us
    • Opportunities
    • Follow us!
  • News & Events/
    • Rare Disease Day
    • News, Events, and Blogs
    • Press Releases
    • Newsletter
Rare Genomics Institute

Empowering Patients Today, Accelerating Cures Tomorrow

News, Events, and Blogs

All the latest news from the team at Rare Genomics Institute including patient success stories, research, events and more.

Rare Genomics Institute
  • About/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
    • FAQ
    • Patient Success Stories
    • Rare Diseases List
    • Education
    • Rare-Ed Infographics
  • Programs/
    • How We Help Patients
    • RG Patient Research Services
    • RareShare
    • RareWear
  • For Researchers/
    • BeHEARD Competition
    • Publications
  • Donate/
    • Donate to RG
  • Join Us/
    • Contact Us
    • Opportunities
    • Follow us!
  • News & Events/
    • Rare Disease Day
    • News, Events, and Blogs
    • Press Releases
    • Newsletter

News from Rare Genomics Institute

The Latest News, Events and More from RG

August 30, 2018

The Complexity of Mito: What we learned from the UMDF Conference

August 30, 2018/ Rare Genomics

At the end of June, we attended our first genetic disease conference: Mitochondrial Medicine 2018 hosted by the United Mitochondrial Disease Foundation (UMDF). We were quick to discover that the Mito community shared many similarities with our own undiagnosed rare disease community.

Read More
August 30, 2018/ Rare Genomics/
RG Events
Rare Disease Conferences, UMDF
  • About/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
    • FAQ
    • Patient Success Stories
    • Rare Diseases List
    • Education
    • Rare-Ed Infographics
  • Programs/
    • How We Help Patients
    • RG Patient Research Services
    • RareShare
    • RareWear
  • For Researchers/
    • BeHEARD Competition
    • Publications
  • Donate/
    • Donate to RG
  • Join Us/
    • Contact Us
    • Opportunities
    • Follow us!
  • News & Events/
    • Rare Disease Day
    • News, Events, and Blogs
    • Press Releases
    • Newsletter

Rare Genomics Institute

Did you know?
An estimated 250 million people worldwide are suffering from a rare disease.
Learn More›

Strength in numbers
Our research sites include top universities and research institutes across the country.
Learn More >

Sign up now for email updates from RG >
 

Contact Us

4859 West Slauson Avenue #573
Los Angeles, CA 90056
.

Rare Genomics Institute is a 501(c)(3) | FEIN : 45-3624709
© 2023 Rare Genomics Institute. All Rights Reserved.

Privacy Statement | Cookie Policy

Disclaimer: RG connects patients to research institutions and assists with logistics and fundraising, but we cannot provide medical advice. Please consult your physician if you have any medical questions or call 911 in an emergency situation.