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Rare Genomics Institute

Empowering Patients Today, Accelerating Cures Tomorrow

RG Press

Rare Genomics Institute
  • About/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
    • FAQ
    • Patient Success Stories
    • Rare Diseases List
    • Education
    • Rare-Ed Infographics
  • Programs/
    • How We Help Patients
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    • BeHEARD Competition
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Written Press about Rare Genomics Institute

2018

  • The Scientist
    May 01, 2018
    Understanding What Makes a Successful Crowdfunding Campaign










2016

  • RARE UNDIAGNOSED NETWORK
    Jan 25, 2016
    Rare Genomics Institute- A Resource for Undiagnosed Patients and Their Families










2015

  • NEW YORK TIMES
    Apr 15, 2015
    Drug Companies Shift Focus to Treating Rare Diseases
  • PROVIDENCE JOURNAL
    Apr 15, 2015
    Drug Companies Shift Focus to Treating Rare Diseases
  • BIO IT WORLD
    Apr 29, 2015
    Industry Experts on Designing Research Platforms to Servce Patient Participants
  • GOODCROWD.info
    May 5, 2015
    Rare Genomics Institute to Study Impact of Crowdfunding on Rare Diseases
  • ORPHAN DRUGANAUT
    May 5, 2015
    Rare Diseases And Crowdfunding: Rare Genomics Institute’s Amplify Hope Initiative
  • HIT CONSULTANT
    May 6, 2015
    Rare Genomics Institute to Study Impact of Crowdfunding on Rare Diseases
  • STREET INSIDER
    June 16, 2015
    New Research Study Establishes 30 Day Crowdfunding Bootcamp for Rare Diseases
  • FINANCIAL TIMES
    Sep 28, 2015
    Genomic Advances Lifts Hopes of Patients with Rare Diseases
  • FIERCE PHARMA
    Dec 3, 2015
    Johns Hopkins Accuses Drugmakers of 'Gaming' Orphan Drug Law




























2013

  • Salon
    July 25, 2013
    Kickstarting a Cure










2012

  • BBC
    Mar 8, 2012
    TED 2012: For They are Jolly Good Fellows
  • TED
    July 17, 2012
    Newly discovered gene may explain 4-year-old’s rare disease, thanks to TED Fellow Jimmy Lin
  • TIME
    Oct 26, 2012
    Why Cheaper Genetic Testing Could Cost Us a Fortune
  • FORBES
    Nov 1, 2012
    Your Genome's On An iPhone (trying to call home...)
  • About/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
    • FAQ
    • Patient Success Stories
    • Rare Diseases List
    • Education
    • Rare-Ed Infographics
  • Programs/
    • How We Help Patients
    • RG Patient Research Services
    • RareShare
    • RareWear
  • For Researchers/
    • BeHEARD Competition
    • Publications
  • Donate/
    • Donate to RG
  • Join Us/
    • Contact Us
    • Opportunities
    • Follow us!
  • News & Events/
    • Rare Disease Day
    • News, Events, and Blogs
    • Press Releases
    • Newsletter

Rare Genomics Institute

Did you know?
An estimated 250 million people worldwide are suffering from a rare disease.
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Disclaimer: RG connects patients to research institutions and assists with logistics and fundraising, but we cannot provide medical advice. Please consult your physician if you have any medical questions or call 911 in an emergency situation.