News, Events & Blogs
NIH's All of Us Program Reaches a Historic Milestone for Precision Medicine
The NIH's All of Us Research Program has reached a historic milestone, becoming the world's largest integrated genomics and health database. Learn how this achievement could accelerate rare disease research, improve precision medicine, and bring new hope to patients and families worldwide.
Why February 29th? The History Behind Rare Disease Day
More than 7,000 rare diseases affect an estimated 1 in 10 Americans, yet public awareness remains limited. Rare Disease Day, established in 2008 by EURORDIS, unites over 100 countries each year to promote research, health equity, and global advocacy. Through education, policy initiatives, and patient-driven storytelling, the movement continues to amplify voices that are too often unheard.