Why February 29th? The History Behind Rare Disease Day

More than 7,000 rare diseases affect an estimated 1 in 10 Americans, yet public awareness remains limited. Rare Disease Day, established in 2008 by EURORDIS, unites over 100 countries each year to promote research, health equity, and global advocacy. Through education, policy initiatives, and patient-driven storytelling, the movement continues to amplify voices that are too often unheard.