We are a community dedicated to helping rare disease patients find hope
Mission Statement
Rare Genomics Institute (RG) is a non-profit organization committed to filling the unmet needs of patients and families affected by rare diseases. Together, we introduce patients to next-generation sequencing, digital health researchers, and innovative medical devices. RG also partners with foundations and companies to provide technology grants (BeHEARD) and bioinformatics research.
Dedicated to Overcoming Barriers
We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
A Culture of Caring
Rare diseases can affect any family at any time. Rare diseases have no boundaries, whether social, economic, or geographic.
We at RG understand the pain that rare disease patients and their families go through. And we care deeply about helping our patients. It’s in our DNA.
Focused on the Individual
While individuals with rare disease face similar challenges, each rare disease is unique in its own way. That’s why we focus attention on the individual.
Individuals receive information about their unique genetic sequence so that their doctors can identify the specific treatment that is right for them.
Organizational Transparency
RG is committed to outstanding stewardship of donated funds. We do not take for granted the trust of our donors.
We aim for accountability and transparency in everything we do, including with every dollar we raise and spend.
Results
Our mission is to help individuals with rare disease obtain genetic sequencing data to help better understand their disease. Donated funds go directly towards this mission.