Rare Genomics Institute (RG) and the Organization for Rare Diseases India (ORDI) announced today that they are one of the recipients of Sanofi Genzyme’s 6th annual Patient Advocacy Leadership (PAL) Awards for 2016. RG and ORDI have won financial support for the development and dissemination of specialized Rare Disease online training modules.Read More
The Rare Genomics Institute (RG) has announced a new division – Rare Genomics Task Force (RGTF). It will be tasked with providing scientific information and support for patients with rare diseases. These efforts include but are not limited to conducting research reviews, writing reports for patients, identifying renowned experts who can help with projects, and connecting experts with rare disease patients. RGTF recently started a free and publicly accessible platform that is currently running through email communication.Read More
The Rare Genomics Institute (RG) announces the BeHEARD (Helping Empower and Accelerate Research Discoveries) Initiative, an annual rare disease science challenge providing technology grants for rare disease research. The RG-hosted contest is aimed at accelerating rare disease research and offering new options for millions of patients suffering from ailments that lack effective treatments.Read More
Washington, D.C, December 1, 2015 - Rare Genomics Institute (RG) has announced today it will join #GivingTuesday, a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. The international nonprofit organization will use the raised funds to help people affected by rare disorders - helping them connect with research, diagnoses, and treatments.Read More
RG Press Release: New Research Study Establishes 30 Day Crowdfunding Bootcamp for Rare Diseases.
Rare Genomics Institute (RG) today announced a 30-day Crowdfunding Bootcamp to help rare disease patients raise funds for high-end exome sequencing to pinpoint the cause of their disease and map possible treatments.Read More