At Rare Genomics, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure.

We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. 

We bring together scientists, entrepreneurs, innovators, and professionals, who share our passion for helping rare disease patients and leverage the crowdfunding capabilities of the Internet to bring the hope of a cure to our patients.

If you are a patient, Learn More ›

Help a Patient, Donate

Discover patients and their stories and help them find the answers they need by donating to their crowdfunding campaign.
Donations go straight to RG's patients to contribute to funding their genetic sequencing. Donate and help them reach their goal.

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News & Events

Find out the latest news from the Rare Genomics Institute, new partnerships, patient information and much more. RG also hosts events from webinars for patients and other information sessions.


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Patient Resources

Discover how Rare Genomics can help you or a Patient you know with an unknown or Rare Disease.
Find the answers to your questions, the Rare Genomics Process, how our Patient Advocacy team guides patients through it and more.

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Get RG's Newsletter 

Rare Genomic's monthly newsletter is the best resource for the latest on RG and Rare Disease, whether you're a prospective patient, family member, carer, researcher, academic keep up-to-date and sign up for our newsletter.

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Solving the Mystery of Rare Diseases

Dr. Jimmy Lin of Rare Genomics Institute invites his audience on a compelling and emotional journey into the lives of children living with rare diseases. He paints a picture of hope through technology while leveraging crowdfunding models to help families on the road to discovering life-saving therapies for rare diseases.

In the spirit of ideas worth spreading, TEDx is a program of local, self-organized events that bring people together to share a TED-like experience. At a TEDx event, TEDTalks video and live speakers combine to spark deep discussion and connection in a small group. These local, self-organized events are branded TEDx, where x = independently organized TED event.