Where Do Rare Genomics Funds Go?
Donated funds go directly to supporting patient-specific research.
We are a nonprofit organization, funded primarily through the generosity of donors who believe in our cause. Donated funds go directly to supporting patient-specific research. We also raise funds through other means, such as grants from academic institutions, foundations, private donations, and other financial sponsors. We are incredibly thankful to everyone who has given us their support and made it possible for us to do what we do.
For ever dollar you donate to Rare Genomics that value is increased 75 times due to the work of our volunteers.
To date, Rare Genomics has helped over 250 families. In 2013, 83% of patients working with Rare Genomics who could not receive insurance coverage or obtain grant funding chose to crowdfund the cost of DNA sequencing. All Rare Genomics families who started crowdfunding reached their goal and 64% of families exceeded their crowdfunding target goal.