Why Donate to RG?

A woman with short blonde hair holding a young blonde boy up in her arms outdoors, surrounded by floating soap bubbles and a background of green trees.

Rare Genomics has helped over 800 families.

We are a nonprofit organization funded primarily through the generosity of donors who believe in our cause. Donated funds go directly to supporting patient-specific research. We are incredibly thankful to everyone who has supported us and made it possible for us to do what we do.

In addition to the individual patient campaigns, we create general infrastructure to help one day enable any one do any research for any disease. Our programs include not only genetic sequencing and research, but also educational, awareness, and capacity building. We hope to best use our little funds to leverage great impact!

Help Support the Rare Genomics Institute

Patients We’ve Helped

  • Soap bubbles floating in the air over a path covered with fallen autumn leaves.

    Daniel

    Daniel is a beautiful, blond 2 years old girl. Daniel smiles a lot and when she is in a room she lights it up

  • A smiling young boy with blonde hair and blue eyes, wearing a white T-shirt, standing on a dark-colored couch with a plush animal blanket nearby.

    Balazs

    Balazs is a 6 year old, very cute, mischievous little boy. Around the age of 9 months he started to have really bad seizures. His lips turned purple and he was not breathing! It was frightening to see it happening to your child and being not able to help him to breathe! 

  • Colorful soap bubbles floating against a background of fallen autumn leaves and trees.

    Harel

    Three-year-old Harel was born with defects in multiple organs of his body, including the lungs, heart, lower limbs, and more. Harel has undergone several surgeries and now has mainly linguistic and motor disabilities and a short stature. 

  • A black and white photo of a girl smiling broadly, showing her teeth, with curly hair.

    Dana

    Dana has a beautiful appearance of a healthy child. Today, at the age of 5 Dana does not walk or speak. She can neither reach nor hold any object. Dana requires full time assistance throughout the day.