Press Releases
Rare Genomics Institute and Amazon Web Services Collaborate to Help Rare Disease
Washington, D.C. March 2, 2022. The Rare Genomics Institute (RG) today announced it is receiving support from Amazon Web Services (AWS) to enhance its RareShare website. RareShare is a unique social hub serving hundreds of rare disorder communities since 2008, allowing direct exchange of information among patients, families, research organizations, and healthcare professionals to improve the lives of those affected.
BridgeBio Awards Grant to Rare Genomics Institute to Help Rare Disease Patients
The Rare Genomics Institute (RG) today announced it has received a grant from BridgeBio Pharma, a clinical-stage biopharmaceutical company founded to discover, create, test and deliver meaningful medicines for patients with genetic diseases and cancers with clear genetic drivers. RG, a non-profit that makes cutting-edge research technologies and experts accessible to rare disease patients, will use the funds to expand its programs supporting rare disease patients.