Press Releases
Rare Genomics Institute and BodiMetrics Partner to Provide Rare Disease Patients with Wearable Devices
Washington, D.C. Aug 2 2023. The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide.
Rare Genomics Institute and Amazon Web Services Collaborate to Help Rare Disease
Washington, D.C. March 2, 2022. The Rare Genomics Institute (RG) today announced it is receiving support from Amazon Web Services (AWS) to enhance its RareShare website. RareShare is a unique social hub serving hundreds of rare disorder communities since 2008, allowing direct exchange of information among patients, families, research organizations, and healthcare professionals to improve the lives of those affected.
Rare Genomics Institute BeHEARD Challenge Awards 21 Rare Disease Grants
Washington, D.C. August 6, 2020. The Rare Genomics Institute (RG) is delighted to announce the winners of the 2019-2020 BeHEARD (Helping Empower and Accelerate Research Discoveries) Rare Disease Science Challenge, a global competition that offers rare disease researchers, who traditionally have difficulty attracting funding, grants of the latest life science innovations and technologies. This unique biotechnology contest allows companies to contribute their technology to make a difference for the rare disease community.