COVID-19 and Rare Disease Patients

The COVID-19 pandemic has put constraints on all of our lives. Many of our daily interactions now take place virtually. When we do head out of the house, people will of course wear masks and keep their distance from others. 

The National Organization for Rare Disorders (“NORD”) is currently soliciting responses to a survey concerning the effectiveness of telehealth appointments for rare disease patients: https://rareaction.org/take-action/#/67.