https://www.raregenomics.org/news-events-blogs daily 0.75 2026-02-16 https://www.raregenomics.org/news-events-blogs/history-behind-rare-disease-day monthly 0.5 2026-02-20 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/afc319cd-4f5b-4db6-b216-2c7951207c39/Rare+Disease+Day+History.png News, Events & Blogs - Why February 29th? The History Behind Rare Disease Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/06535c00-845a-4e34-bd7a-b5b84c589e9c/RDD+Zebra.png News, Events & Blogs - Why February 29th? The History Behind Rare Disease Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/44b06754-e62f-453f-aca4-2345ad30a372/RDD+Calendar.png News, Events & Blogs - Why February 29th? The History Behind Rare Disease Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/drug-repurposing-finding-new-uses-for-old-medicines monthly 0.5 2026-02-20 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1565985e-10fd-4e4c-a39c-617452f5357e/Drug+Repurposing.png News, Events & Blogs - Drug Repurposing: Finding New Uses for Old Medicines in Rare Diseases https://www.raregenomics.org/news-events-blogs/redefining-the-future-of-rare-diseases-the-power-of-gene-therapy monthly 0.5 2025-11-14 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/806c5994-6e0b-4afb-b6d3-a9b038d63ec0/pexels-markus-winkler-1430818-18485507.jpg News, Events & Blogs - Redefining the future of Rare Diseases: The Power of Gene Therapy  - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/the-future-of-rare-disease-research monthly 0.5 2025-10-24 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1761267689941-UNZB2PFMG6JGPFJEE58M/unsplash-image-XLhDvfz0sUM.jpg News, Events & Blogs - The Future of Rare Disease Research - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/economics-and-politics-in-rare-disease-treatments monthly 0.5 2025-09-15 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1757974091311-5UBFWAELW7XPANQ77TMG/unsplash-image-l2iCYoXeBkY.jpg News, Events & Blogs - Economics and Politics in Rare Disease Treatments: The Rising Cost and Challenges - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/precision-genomics-for-rare-diseases-shaping-the-future-of-treatment monthly 0.5 2025-06-16 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1750097845369-AX8PJ4V886ATL7LAZ0T2/unsplash-image-gHBJK2PnELQ.jpg News, Events & Blogs - Precision Genomics for Rare Diseases: Shaping the Future of Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/a175e266-ce55-45f6-81a2-40dd45954609/Rare+genomics+Institute+%281%29.png News, Events & Blogs - Precision Genomics for Rare Diseases: Shaping the Future of Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/funding-challenges-in-rare-disease-research monthly 0.5 2026-02-27 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/54438c9c-a100-499b-b484-a84fdd9efab5/closeup-cash-stethoscope-healthcare-expenses-concept.jpg News, Events & Blogs - Funding challenges in Rare Disease Research: How financial support can transform the Rare Disease Landscape - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/finding-emotional-amp-mental-health-support-for-patients-amp-caregivers monthly 0.5 2025-04-23 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1745367731997-XZPMFHJQ6K1SND8NNOPB/unsplash-image-4le7k9XVYjE.jpg News, Events & Blogs - Finding Emotional & Mental Health Support for Patients & Caregivers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1745367766162-CVL1O4NUKCFWOO7TPX99/unsplash-image-LQ1t-8Ms5PY.jpg News, Events & Blogs - Finding Emotional & Mental Health Support for Patients & Caregivers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/breaking-down-genetic-testing-what-patients-and-families-need-to-know monthly 0.5 2025-04-23 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1745365953579-10Q6KYCASSYYZ6AYUBMA/unsplash-image-ysv6k_gPOZM.jpg News, Events & Blogs - Breaking Down Genetic Testing: What Patients and Families Need to Know - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/b9953c25-c06c-493d-bfdb-8a05be137f90/gen_counseling+%281%29.jpg News, Events & Blogs - Breaking Down Genetic Testing: What Patients and Families Need to Know - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2024/11/26/navigating-clinical-trials-a-guide-for-rare-disease-patients monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1733881468215-4B17PKM77G070IPTRYW0/unsplash-image-IFpQtennlj8.jpg News, Events & Blogs - Navigating Clinical Trials: A Guide for Rare Disease Patients - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2024/10/15/ai-in-healthcare-revolutionizing-genomic-sequencing-and-rare-disease-treatment monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/01b74bf9-bfb7-407a-8806-dc97b94e0660/istockphoto-1961399015-612x612.jpg News, Events & Blogs - AI in Healthcare: Revolutionizing Genomic Sequencing and Rare Disease Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2024-informa-connect-rare-disease-innovation-and-partnering-summit monthly 0.5 2025-01-16 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/5c7234a4-ff6f-4654-aa0a-1345b9f7b56b/RareDisease_728x90_RareGenomics+%281%29.jpg News, Events & Blogs - 2024 Informa Connect Rare Disease Innovation and Partnering Summit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2023/4/11/report-from-the-field-the-crucial-role-of-physical-therapists-in-pediatric-muscular-disorders monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/6e98a42e-786b-443c-a388-3e2c317bdc2f/therapy-center-gd011aff1a_1920.jpeg News, Events & Blogs - The role of the physiotherapist in diagnosing pediatric neuromuscular diseases - “Conversation with families usually start with questions that come down to this: ‘What’s wrong with my child?’ or ‘They don’t seem to be progressing like other children his age.’” - Pediatric Physiotherapist in Minneapolis, MN https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/35019ebc-2a53-48b4-883d-84b8e85c0b2f/unsplash-image-DjG-B1lqT90%283%29.jpg News, Events & Blogs - The role of the physiotherapist in diagnosing pediatric neuromuscular diseases - “A definitive diagnosis of a genetic neuromuscular disorder needs to come from a neurologist, but that’s almost never the first stop for patients because the family needs a referral.” - Hospital-based Pediatric physiotherapist in Boston, MA https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/8d252ec5-8802-4867-bc2e-6d14ac666c33/gowers%2Bsign%2Bdiagram.png News, Events & Blogs - The role of the physiotherapist in diagnosing pediatric neuromuscular diseases - Make it stand out Gowers sign is the characteristic pattern observed in patients with Duchenne muscular dystrophy wherein they 'climb up' their thighs with the aid of their hands to overcome the weakness of their pelvic and proximal lower limb muscles. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/6f8a5f02-c3d9-4b12-b34e-d119c1f65f0c/foot-massage-gbbaeed7db_1920%281%29.jpg News, Events & Blogs - The role of the physiotherapist in diagnosing pediatric neuromuscular diseases - “As a physical therapist you start with what you can see, and you ask questions about what you can’t see. Questions like ‘What was the birth like?’ ‘What was their development like?’ ‘Did they look normal at first and then develop symptoms?’” - Private-Practice Pediatric physiotherapist in Los Angeles, CA https://www.raregenomics.org/news-events-blogs/2023/5/3/he-suffered-from-a-rare-cancer-before-the-age-of-two-what-was-wrong monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/c69d78e9-d461-4f4c-a112-7d0f20375858/20221220_viktor_pataki.jpg News, Events & Blogs - He Suffered from a Rare Cancer Before the Age of Two. What was wrong? - The one-year-old boy’s white blood cell levels were dangerously low. His parents were desperate for answers. The one-year-old boy’s white blood cell levels were dangerously low. His parents were desperate for answers. https://www.raregenomics.org/news-events-blogs/2023/2/25/sometimes-its-a-zebra monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1723487457447-7A1SXIGVWDCG242522A9/unsplash-image-UgidX4V13Gc.jpg News, Events & Blogs - Sometimes, It’s a Zebra - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2022/10/18/misdiagnosed-with-monkeypox-understanding-how-rare-conditions-are-presented-1 monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1723488687762-447JQ7HS1I0BAKHU1V0Z/unsplash-image-m7zKB91brGo.jpg News, Events & Blogs - Misdiagnosed With Monkeypox: Understanding How Rare Conditions Are Presented - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2022/8/9/madelaine-and-allys-story monthly 0.5 2025-11-20 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/73e87c7a-fbe6-4471-8174-64c2d0ec220d/IMG_0607.jpg News, Events & Blogs - Madelaine and Ally's Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2022/6/4/kelley-and-ryans-story monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/9138797b-feeb-473b-a41b-6186115693dc/Ryan%2Band%2BKelley.jpeg News, Events & Blogs - Kelley and Ryan's Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1733882039269-QJGWYHX4GKMOYMEAUC9Z/Ryan%2B1.jpg News, Events & Blogs - Kelley and Ryan's Story 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0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1752020257229-KAAXIM6H7PNM47MZIRQH/unsplash-image-P8rgDtEFn7s.jpg News, Events & Blogs - Economics and Politics in Rare Disease Treatments - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/2021/5/6/interview-with-rarewear-patient-heidi-woods monthly 0.5 2025-07-09 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/16464b83-11a9-4307-b217-08b6b4b3d034/0_image2.jpeg News, Events & Blogs - Interview with RareWear Patient Heidi Woods - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/7fzx9lhn8wj5wgha44mp3rkauxruqp monthly 0.5 2025-08-08 https://images.squarespace-cdn.com/content/v1/668f01d1804de27a44f97387/1754691005139-E8SIXLBEGUJ0KVJ64WH9/unsplash-image-KB46Fg2EbDI.jpg News, Events & Blogs - Remember Undiagnosed Children’s Awareness Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.raregenomics.org/news-events-blogs/1wjs49oauhfs8sipmcau7rqmh7rn1x monthly 0.5 2025-08-08 https://www.raregenomics.org/news-events-blogs/category/Patient+Success+Stories monthly 0.5 https://www.raregenomics.org/news-events-blogs/category/Events monthly 0.5 https://www.raregenomics.org/news-events-blogs/category/News monthly 0.5 https://www.raregenomics.org/news-events-blogs/category/Blog monthly 0.5 https://www.raregenomics.org/news-events-blogs/tag/Caregivers monthly 0.5 https://www.raregenomics.org/news-events-blogs/tag/STAT+Act monthly 0.5 https://www.raregenomics.org/news-events-blogs/tag/Langerhans+Cell+Histiocytosis+%28LCH%29 monthly 0.5 https://www.raregenomics.org/news-events-blogs/tag/Healthcare+Policy monthly 0.5 https://www.raregenomics.org/news-events-blogs/tag/Alstr%C3%B6m+syndrome monthly 0.5 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