RG Rare Disease Day Acknowledgment: Small steps make a big difference.

RG Rare Disease Day Acknowledgment: Small steps make a big difference.

LOS ANGELES, CA; April 15, 2019 --

Thank you to all our supporters on **Rare Disease Day 2019**, we are so thankful to have a community that is working with us to push science and medicine forward to meet the needs of rare disease patients.

This year we were lucky to have a new community raise awareness with us on Rare Disease Day. We want to thank all Illumina employees who decided to advocate for rare disease patients on this important day. When we say that every bit makes a difference, that is because it makes all the difference, especially for families with significant unmet need.

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RG Speaks at Partnering for Cures Conference

RG Speaks at Partnering for Cures Conference

n November 3, Imran Babar, VP of Scientific Affairs at RG, participated in a panel at the Partnering for Cures Conference, called Disruptor’s Academy: Crafting a high-impact prize challenge: lessons from the field. Imran spoke about the success RG has had in partnering with companies to offer prizes for rare disease research that has difficulty attracting traditional sources of funding. 

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RG Presents at 5th U.S. China Health Summit

We are proud to announce that RG’s China branch will be presenting as finalists at the Award Ceremony at the Young Leadership Forum of the 5th US-China Health Summit at Harvard University on Sept. 29. RG’s China branch was selected from more than 30 exceptional healthcare startup teams in the initial round of the 2015 Innovation Competition on the U.S. side, and together with additional teams selected from China, RG will join them to make a podium presentation at Harvard. The competition encourages young entrepreneurs to identify areas of unmet need and to develop innovative healthcare solutions- a perfect fit with RG’s mission! Read more about the Summit and the competition here: https://www.facebook.com/uschinahealthsummit

Rare Genomics model presented at Paris Assembly

Dr. Jimmy Lin, Rare Genomics Institute (RG) President, spoke at the 2015 Paris Assembly that took place April 16-18 at the Institut Pasteur in Paris, France. Dr. Lin presented to an audience comprising of scientists, entrepreneurs, and government personnel coming together on the theme “Connecting Open Research, Open Education and Open Social Impact”.

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