The Rare Genomics Task Force (RGTF) division of Rare Genomics Institute aims to provide scientific information and support for patients with rare diseases. These efforts include but are not limited to conducting research reviews, writing reports for patients, identifying renowned experts who can help with projects, and connecting experts with rare disease patients. RGTF recently started a free and publicly accessible platform that is currently running through email communication.
In the US, around 20 million people suffer from rare diseases. Unfortunately, we are only in the very early stages of diagnosing and treating the majority of these rare diseases. As such, patients are left with limited information regarding their condition. As patients who have rare diseases have increasingly made email inquiries,, the RGTF initiated a better and faster way of communication with patients about their diseases with an online platform through which they can directly submit questions. Our analysts aim to answer their inquiries quickly, usually within 10 business days.
RGTF provides an innovative and convenient way of helping patients with rare diseases. Compared to conventional email communication, this application platform (http://www.raregenomics.org/rgtf) will expedite the spread of knowledge as well as better satisfy the needs of patients. With trained scientific analysts and established connections with experts in diverse areas of rare diseases, the RGTF provides advanced scientific support to help patients.
Please do not hesitate to contact our experts with inquiries at http://www.raregenomics.org/rgtf
Contact: The Rare Genomics Institute
8504 Firestone Blvd. #198, Downey CA 90241
About the Rare Genomics Institute
RG is a non-profit that makes cutting edge research technologies and experts accessible to rare disease patients. Partnering with top medical institutions, such as Harvard, Yale, Johns Hopkins, and Stanford, RG helps design personalized research projects for diseases so rare that no dedicated organization exists. By providing an expert network and an online crowdfunding mechanism, RG helps families source, design, and fund personalized research projects in diseases not otherwise studied. Ultimately, RG aims to expand on its current genome sequencing-focused approach to enable community funding to support any type of research that leads to rare disease therapeutics.
For more information about Rare Genomics Institute, visit http://www.raregenomics.org.