Has your insurance company refused to cover the cost of your genetic sequencing or other medical expenses related to your child’s rare disease? The Rare Genomics Institute has been referring qualifying families to the First Hand Foundation, a public charity that provides funding for individual children with health needs when insurance and other financial resources have been exhausted. To qualify for these grants, children must be under the age of 18 (or under the age of 21 if in a child-like mental state), be under the care of a physician, and must not have insurance coverage for the expense being requested. Grants may be requested for treatments and clinical procedures (such as genetic sequencing), medical equipment, travel costs for treatment, and vehicle modifications.
For more information on the First Hand Foundation grants and how RG is able to support your application for sequencing funding, please contact the director of our patient advocacy team, Romina Ortiz, at Romina.Ortiz@raregenomics.org. To learn more about the qualifications, application process, and types of covered expenses, you can also visit their website.