Innovations in medical technologies and therapies play a major role in today’s advancements in public health. This in turn has resulted in the regulatory ethics paradigm (REP) which ensures the rights and welfare of the participants of clinical research.Read More
RG President Dr. Jimmy Lin has been selected as a member of the Patient-Centered Research Outcomes Institute (PCORI) patient engagement panel. On the panel, Dr. Lin will work to prioritize PCORI’s research questions and develop meaningful patient and stakeholder engagement efforts.
PCORI is a non-profit, non-governmental organization, authorized by Congress in the 2010 Affordable Care Act. PCORI funds research aimed at improving patient care and outcomes through patient-centered clinical effectiveness research, or CER. The goal of PCORI’s work is to determine which healthcare options available to patients work best in particular circumstances.
Click here for more information on PCORI and Dr. Lin’s role.
Rare Genomics Institute: Infographic (Accelerating Cures across the Rare Disease Landscape)
The dynamically changing landscape of rare disease treatments is largely attributed to increasing global awareness. Rare Genomics Institute (RG) is playing a major role empowering the rare disease patient and accelerating cures.Read More
Doctors ruled out foot sprain. Then came the downward spiral. Increasingly he was losing motor control and had difficulty walking. He underwent a battery of tests, x-rays, magnetic resonance, but there was no diagnosis. Physical therapy proved futile. Generalized, progressive dystonia was ruled out too.Read More