Reading Primary Research

The promise of new treatments and cures excites our imaginations, especially when we’re looking to help a loved one or ourselves. Information on rare diseases is so hard to come by that any news on a potential discovery is welcome. But how accurate is that news? At a time when more information lies at our fingertips than ever before, healthcare professionals, patients, and caregivers have to be able to sift through all the claims to find the facts.

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