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Rare Genomics Institute

Empowering Patients Today, Accelerating Cures Tomorrow

Blog

Rare Genomics Institute Blog. Rare Genomics staff, volunteers, researcher and friends share and discuss everything to do with Rare Diseases.

Rare Genomics Institute
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November 07, 2016

RareShare by Rare Genomics Institute is a finalist for the Global Impact Award!

November 07, 2016/ Silvia Balu

Monday is the final event for the Global Impact Award, a business plan competition that awards up to $50,000 to impactful, scalable, and sustainable Washington University in St. Louis ventures, and RareShare is a finalist!

Read an interview with RG's founding members:
November 07, 2016/ Silvia Balu/

Silvia Balu

  • Rare Genomics Institute ...
  • Leading the Way: Beyond the ...
  • Who We Are/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
  • Patient Resources/
    • Amplify Hope
    • FAQ
    • E-Books
    • Podcasts
    • Patient Success Stories
    • Rare Diseases List
    • Education
  • Programs/
    • RG Patient Advocacy
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    • RGTF
    • RareShare
    • BeHEARD Competition
  • For Researchers/
    • Publications
    • RG International
  • Donate/
    • Why Donate?
    • Donate to RG
  • Join Us/
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    • Follow us!
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  • Blog/

Rare Genomics Institute

Author Profiles:

Jimmy Lin

Danielle Fumagalli

Nicole Lipitz

Steven Witte

Daryl Velez

Line Stage Clemmensen

Edith Stone

Prasanna Chintapalli

  • March 2018
    • Mar 3, 2018 Living with Issacs’ Syndrome, a Rocky Story Mar 3, 2018
  • January 2018
    • Jan 18, 2018 Rare Genomics earned the Platinum Seal of Transparency from GuideStar Jan 18, 2018
  • December 2017
    • Dec 10, 2017 Personalized Medicine and Rare Disease Dec 10, 2017
    • Dec 10, 2017 Genomics and the Genetic Revolution Dec 10, 2017
  • November 2017
    • Nov 20, 2017 Rare Genomics Patient Story: How iHope funding for genome sequencing helped Amelia's diagnosis Nov 20, 2017
  • October 2017
    • Oct 4, 2017 Allyson "Ally" Lark - October Rare Bear Oct 4, 2017
  • August 2017
    • Aug 23, 2017 The VanBrocklin’s are moving forward after Sequencing Aug 23, 2017
  • February 2017
    • Feb 21, 2017 Tenth Annual Rare Disease Day Feb 21, 2017
    • Feb 19, 2017 Paper on Orphan Drug Development in China Published Feb 19, 2017
  • December 2016
    • Dec 29, 2016 Leading the Way: Marching Onward Dec 29, 2016
    • Dec 4, 2016 CRISPR and Gene Therapy: An Overview of the Breakthrough Gene-Editing Tool Dec 4, 2016
  • November 2016
    • Nov 11, 2016 Rare Genomics Institute participates in #GivingTuesday again Nov 11, 2016
    • Nov 7, 2016 RareShare by Rare Genomics Institute is a finalist for the Global Impact Award! Nov 7, 2016
  • October 2016
    • Oct 11, 2016 Leading the Way: Beyond the Diagnosis Oct 11, 2016
  • September 2016
    • Sep 26, 2016 Shooting for the Moon in Honor of Mesothelioma Awareness Day Sep 26, 2016
    • Sep 13, 2016 Rare Genomics is a finalist for the 2016 Drucker Prize! Sep 13, 2016
    • Sep 11, 2016 Could Low-Dose Naltrexone be an Effective Treatment for Hailey-Hailey Disease? Sep 11, 2016
  • June 2016
    • Jun 16, 2016 BeHEARD 2015 Winner Update: Progress on Rare Skin Disorders Jun 16, 2016
    • Jun 6, 2016 Patient Stories eBook Jun 6, 2016
    • Jun 1, 2016 DNA Dash Jun 1, 2016
  • May 2016
    • May 23, 2016 BeHEARD 2015 Winner Update: Progress on Opitz C Syndrome May 23, 2016
    • May 16, 2016 A virtual genetics clinic on 4q deletion syndrome. Authors: Strehle EM, Kushwaha D, Middlemiss P, Lin J, Hickey S. May 16, 2016
    • May 12, 2016 How I Got My Genome Sequenced May 12, 2016
  • April 2016
    • Apr 26, 2016 Three Tips for Crowdfunding for Medical Expenses Apr 26, 2016
    • Apr 16, 2016 Leading the Way: Positive Exposure (Part Two) Apr 16, 2016
    • Apr 10, 2016 The Might of the Mights: Parents Overcome Genetics to Save Son Apr 10, 2016
    • Apr 10, 2016 Mission Possible Apr 10, 2016
    • Apr 2, 2016 Leading the Way: Positive Exposure Apr 2, 2016
  • March 2016
    • Mar 19, 2016 Reading Primary Research Mar 19, 2016
  • February 2016
    • Feb 23, 2016 Get Ready for Rare Disease Day Feb 23, 2016
  • December 2015
    • Dec 18, 2015 The Impact Of Rare Disease Research On The Development Of New Medicines Dec 18, 2015
  • October 2015
    • Oct 18, 2015 Promote Scientific Research through RG Amplify Hope Campaigns Oct 18, 2015
  • August 2015
    • Aug 25, 2015 RG Success Story: Harrison Snow Starts Treatment for Rare Muscular Disease Aug 25, 2015
    • Aug 15, 2015 Regulatory Reforms and the Rare Disease Patient Aug 15, 2015
    • Aug 14, 2015 Creative Intellectual Property Strategies for Rare Diseases Aug 14, 2015
  • July 2015
    • Jul 21, 2015 RG President Jimmy Lin Selected as PCORI Advisory Panel Member Jul 21, 2015
    • Jul 1, 2015 Rare Genomics Institute: Infographic Jul 1, 2015
  • April 2015
    • Apr 7, 2015 Volunteer Focus: Rajini Haraksingh, VP, Science 2.0 Apr 7, 2015
    • Apr 7, 2015 Research Snapshot: Beautiful View of Brain Neurons Apr 7, 2015

 

 

 

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Disclaimer: RG connects patients to research institutions and assists with logistics and fundraising, but we cannot provide medical advice. Please consult your physician if you have any medical questions, or call 911 in an emergency situation.