Rare Disease Day is around the corner

The date is official and it is just around the corner – February 28th 2017. Start getting ready for Rare Disease Day!

Last year Rare Genomics Institute (RG) participated in the annual Rare Disease Day, and we will be a part of the global phenomenon once again in 2017.

This year is the tenth annual Rare Disease Day, and we at RG will of course be a part of this anniversary. On the last day of February patients worldwide stand together and make their voices heard. Rare Disease Day has been growing and expanding since its beginning in 2008. Last year more than 80 countries and regions across the world participated in Rare Disease Day.

Rare Disease Day beginning and expanding

In 2008 EURORDIS with the Council of National Alliances launched the first Rare Disease Day on February 29th. Rare Disease Day takes place on February 29th (the rarest day) when this day occurs.The first year had 18 participating countries and was only in Europe.

The next year, 2009, 30 different countries and regions took a part in Rare Disease Day, which was on February 28th. Already by the second annual of Rare Disease Day the phenomenon had spread out of Europe and with the United States, Australia, China, and many other participating countries, it became a worldwide phenomenon.  

Rare Disease Day has only grown and expanded as an annual opportunity to create awareness on rare diseases since the very first event in 2008. In 2016, the latest Rare Disease Day, 85 countries and regions participated.

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Your donation gives patients a brighter future

Rare Disease Day is an opportunity for RG, the rare disease community and of course patients worldwide to draw attention and awareness to rare diseases. Getting the public’s and decision-makers’ attention is vital in the fight to find successful treatments and continue to cure rare diseases.

Your participation in Rare Disease Day by donating to RG will help patients lives. By contributing to Rare Disease Day February 28th you contribute to a brighter future for the patients. A future without rare diseases.

Your donation will give RG opportunities to provide access to genomic sequencing tests and a team of experts. This is what is needed to identify, treat, and in the end cure rare diseases.

Therefore, we want to raise $5,000 by March 31. Our goal to will help patients one step closer to a diagnosis. Every donation counts and makes a difference for people living with or affected by rare diseases.

Join us in the tenth annual Rare Disease Day on the last day of February, and help make a change and bring back hope for people affected with rare diseases.

 

Slogans throughout the years:

2008: “A rare day for very special people”

2009: “Patient care - A public affair!”

2010: “Patients and Researchers: Partners for life!”

2011: “Rare but Equal”

2012: “Rare but Strong Together”

2013: “Rare Disorders without Borders”

2014: “Join Together for Better Care!”

2015: “Day-by-day, hand-in-hand”

2016: “Join us in making the voice of rare diseases heard”