Joaking
100%
Raised:
$7,500
Goal:
$7,500
Donors:
34

Joaking was a normal child until age 3, playing, jumping, climbing ladders, running. I would scratch his face lovingly and this affectionate moment made us both very happy. That is when suddenly something happened...

Learn More About Joaking
Gram
68%
Raised:
$5,125
Goal:
$7,500
Donors:
41


Our son Gram is a sweet and chunky little guy who loves to play with his older brother and sister and dance in his own unique way. He is the youngest of three and has a kind-of go with the flow attitude.

Click to Support Gram
Robert
102%
Raised:
$7,700
Goal:
$7,500
Donors:
50

Even though Robert is confined to a wheelchair and fed through a tube, he is a fighter. We're proud of his love for life and his great sense of humor.

Learn More About Robert
RGI Operational Fund
2%
Raised:
$2,880
Goal:
$100,000
Donors:
19


Since 100% of our patient fundraising goes towards the projects, we raise separate funds for the organizational and operational costs of running the organization. Consider helping us help others!

Click to Support RGI
Maya
142%
Raised:
$3,550
Goal:
$2,500
Donors:
50

Maya is a silly, cuddly three and a half year old girl. Like others her age, she loves to read books, paint, and play with her dog... but unlike others her age, she has a host of issues that leave her unable to speak, run , or climb stairs.

Learn More About Maya
Selah

Coming Soon!

Selah is a beautiful girl, and some days, she seems normal, but then the next day, she can barely walk and is locked inside her own world. Nobody ever knows when she will break out of those moods, and the not knowing part is the hardest.

JBS

Coming Soon!

JBS is 9 years old and has undergone more medical testing than most people will in a lifetime. He has a muscle disease of "unknown etiology." Despite a learning disability that causes his peers to avoid him, he remains a sweet, kindhearted little boy.

David

Coming Soon!

David has had extensive testing for a variety of different problems, but to-date there is still no diagnosis. The best that his doctors can do is tell that it is "something genetic." They just don't know what that "something" is.

Join Our Cause - Donate to Support a Cure!

What happens with my donation?

You can decide to support a patient-specific research project by giving to a specific project. 100% of funds will go costs directly to the research project, including genome sequencing and analysis. You can also make a separate donation to help cover the operations costs for RGI so we can help more patients.

Why does the donation receipt read Syndroms Without a Name (SWAN) as the recipient?

As a result of our partnership, SWAN is collecting on our behalf for the children who have volunteered to participate in our pilot programs. All funds WILL still go to supporting these children. Thank you very much for your understanding, and we apologize for any confusion that this may cause.

What happens with the extra funds in a campaign that has exceeded its goals?

Extra funds go to benefiting our other patients. If you wish to donate to a campaign that has already achieved its goals, you can do so without any worry! Your accompanying message of support will still go to the family you intended, while the extra funds will be re-distributed to help another patient in need. Your gift of hope is assured to have maximum impact.

Any additional questions?

Please feel free to contact us!