Alicia
1%
Raised:
$100
Goal:
$7,500
Donors:
1


Alicia is 7 years old and born in Malaysia. She has never spoken a word since birth. She is unable to shower or dress herself, brush her teeth or hair and eats her meals always with a teaspoon. She can take her velcro strap shoes off but needs help putting them on. Doctors cant say whether she will ever talk or improve in her condition but we try whatever we can to make her better.

Click to Support Alicia
Balazs
80%
Raised:
$8,057
Goal:
$10,000
Donors:
50


Balazs is a 6 year old, very cute, mischievous little boy. Around the age of 9 months he started to have really bad seizures. His lips turned purple and he was not breathing! It was frightening to see it happening to your child and being not able to help him to breathe!

Click to Support Balazs
Harel (Israel)
100%
Raised:
$6,500
Goal:
$6,500
Donors:
1

Three-year-old Harel was born with defects in multiple organs of his body, including the lungs, heart, lower limbs, and more. Harel has undergone several surgeries and now has mainly linguistic and motor disabilities and a short stature. Seeking a possible explanation for these disabilities we have undergone several diagnostic examinations with no resolution...

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Dana (Israel)
100%
Raised:
$6,000
Goal:
$6,000
Donors:
9

Dana has a beautiful appearance of a healthy child. Today, at the age of 5 Dana does not walk or speak. She can neither reach nor hold any object. Dana requires full time assistance throughout the day. Up till the age of 4 months we lived a normal life with our daughter, then we started noticing that her development is different from other babies...

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Saba Sheeba
100%
Raised:
$1,500
Goal:
$1,500
Donors:
2

Pain - A great protective mechanism a human can have. Imagine if you get hurt and don’t feel it. Imagine even when you break a bone and still do not feel it. Imagine on a warm sunny day, you are walking on the beach, your body warms up but your body doesn't sweat to cool itself down. It is Congenital Insensitivity to Pain with Anhydrosis (CIPA).

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Gavin
100%
Raised:
$5,000
Goal:
$5,000
Donors:
12

Gavin is a 39 year old man who has been living with an excruciatingly painful disease for 20 years. Gavin woke up one morning and found he had extreme spasm like sensations in his throat. It is as if it came out of nowhere. For that first year he had difficulty talking.

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Noa (Israel)
104%
Raised:
$5,200
Goal:
$5,000
Donors:
3

Noa is a 4 year's old beautiful curly haired girl. Noa suffers from an undiagnosed developmental delay. She is unable to walk and speak, her muscles are partially low and high toned and she has difficulties in planning her movements.

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Nathan (Israel)
1%
Raised:
$100
Goal:
$7,500
Donors:
1


It is extremely difficult for me to write the following lines about the story of our child Nathan's (pseudonym) life since he was born. Nathan is a sweet child, 3 years old, who suffers from an unexplained intellectual disability.

Click to Support Nathan (Israel)
Windsor
101%
Raised:
$7,630
Goal:
$7,500
Donors:
50

Windsor is a beautiful 23 month old girl who loves music and loves to play! If I could tell you only one thing about her, I'd tell you she never EVER gives up. Windsor has a muscle condition called hypotonia. When she was born, she was too weak to move her little body at all.

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Sabrina
104%
Raised:
$7,800
Goal:
$7,500
Donors:
26

Sabrina is a beautiful ten year old, who is having a hard time understanding why she cannot do the things her friends have no problem with. Sabrina likes to write stories and draw pictures, but it is getting difficult for her to write and draw.

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Annaston
28%
Raised:
$2,125
Goal:
$7,500
Donors:
50


Annaston was our first and only child...It was not until, the day after she was born that the Drs noticed something was wrong...My world was turned upside down from that point forward. An x-ray was taken to show that her stomach was not connected to her intestine.

Click to Support Annaston
Joaking
102%
Raised:
$7,705
Goal:
$7,500
Donors:
36

Joaking was a normal child until age 3, playing, jumping, climbing ladders, running. I would scratch his face lovingly and this affectionate moment made us both very happy. That is when suddenly something happened...

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Maya
142%
Raised:
$3,550
Goal:
$2,500
Donors:
50

Maya is a silly, cuddly three and a half year old girl. Like others her age, she loves to read books, paint, and play with her dog... but unlike others her age, she has a host of issues that leave her unable to speak, run , or climb stairs.

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Gram
100%
Raised:
$6,525
Goal:
$6,500
Donors:
50

Our son Gram is a sweet and chunky little guy who loves to play with his older brother and sister and dance in his own unique way. He is the youngest of three and has a kind-of go with the flow attitude.

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Robert
102%
Raised:
$7,700
Goal:
$7,500
Donors:
50

Even though Robert is confined to a wheelchair and fed through a tube, he is a fighter. We're proud of his love for life and his great sense of humor.

Learn More About Robert
RGI Fund
53%
Raised:
$53,472
Goal:
$100,000
Donors:
31


Since 100% of our patient fundraising goes towards the projects, we raise separate funds for the organizational and operational costs of running the organization. Consider helping us help others!

Click to Support RGI Fund
Selah

Coming Soon!

Selah is a beautiful girl, and some days, she seems normal, but then the next day, she can barely walk and is locked inside her own world. Nobody ever knows when she will break out of those moods, and the not knowing part is the hardest.

JBS

Coming Soon!

JBS is 9 years old and has undergone more medical testing than most people will in a lifetime. He has a muscle disease of "unknown etiology." Despite a learning disability that causes his peers to avoid him, he remains a sweet, kindhearted little boy.

David

Coming Soon!

David has had extensive testing for a variety of different problems, but to-date there is still no diagnosis. The best that his doctors can do is tell that it is "something genetic." They just don't know what that "something" is.

River

Coming Soon!

Hi! My name is River and I am so happy you've decided to visit my crowdfunding page! I'm always excited to share my story because it is so unique. I was born unexpectedly and prematurely at 36 weeks; it has been a wild ride ever since!

Skyler

Coming Soon!

Skyler wears a holtier monitor for 24 hrs for irregular heart rate, and suffers from behavioral issues and often crippling hip and leg pains. He has seen a number of different physicans, including specialists in Cardiology, Gastroenterology, Neurology, Endocrinology, Ophthalmology and Psychiatry.

Adison

Coming Soon!

Adison was born with an undiagnosed genetic syndrome. Every parent wants the best for their child, but when you have a child with special needs that “best” becomes astronomical.

Join Our Cause - Donate to Support a Cure!

What happens with my donation?

You can decide to support a patient-specific research project by giving to a specific project. After transaction costs, 100% of funds will go costs directly to the research project, including genome sequencing and analysis. You can also make a separate donation to help cover the operations costs for RGI so we can help more patients.

Why does the donation receipt read Syndroms Without a Name (SWAN) as the recipient?

As a result of our partnership, SWAN is collecting on our behalf for the children who have volunteered to participate in our pilot programs. All funds WILL still go to supporting these children. Thank you very much for your understanding, and we apologize for any confusion that this may cause.

What happens with the extra funds in a campaign that has exceeded its goals?

Extra funds go to benefiting our other patients. If you wish to donate to a campaign that has already achieved its goals, you can do so without any worry! Your accompanying message of support will still go to the family you intended, while the extra funds will be re-distributed to help another patient in need. Your gift of hope is assured to have maximum impact.

Any additional questions?

Please feel free to contact us!